9:00 Spokesperson for the Icelandic ME Society welcomes guests
9:10 Representative from health authorities
9:20 Prof. Margrét Guðnadóttir: Akureyri disease
9:50 Helga Haraldsdóttir. A patient tells about her experience of the Akureyri disease
10:05 Questions to speakers mentioned above
10:35 Short video from the Icelandic ME society
11:25 Prof. Simon Carding: Establishing a European ME/CFS Research Centre of Excellence in Norwich: Is there a Gut-Brain Link in ME/CFS?
11:55 Questions to Dr. Peterson and the Invest in ME representative.
13:10 Øystein Fluge, MD, PhD, consultant in oncology and researcher, Dept. of Oncology, Haukeland University Hospital and Ingrid Gurvin Rekeland, MD, physician in oncology training and research fellow, Dept. of Oncology, Haukeland University Hospital:
Therapeutic intervention and disease mechanisms
14:30 Dr. Nigel Speight, Paediatrician, Durham UK:
The challenge of the severe case of Paediatric ME
15:00 Ewa W. Wedlund, reg. occupational therapist
and med. lic.: Activity and Participation in persons with ME/CFS: Non-medical approaches.
15:30 Questions from audience for Dr. Fluge, Dr. Rekeland, Dr. Speight og Ewu W. Wedlund
16:05 Panel discussion with all the speakers. Audience can hand in written questions in forehand
17:00 End of agenda
ME CONFERENCE IN REYKJAVIK
SEPTEMBER 28, 2017
ABOUT THE CONFERENCE
The Icelandic ME society is proud to introduce it´s first conference about ME in Iceland.
ME is known by many as Chronic Fatigue Syndrome (CFS or síþreyta in Icelandic) and fatigue is certainly a prominent symptom of the disease. But other symptoms are present and can be very serious. Therefore patients and many others prefer to use the name myalgic encephalomyelitis or ME.
Not all diagnosed with CFS in Iceland have ME. What characterises ME is Post-exertional malaise (PEM); a worsening of many ME symptoms as a result of physical or mental exertion. At the World Health Organization myalgic encephalomyelitis has the classification number G93.3.
The Akureyri outbreak was an outbreak of Myalgic Encephalomyelitis in Northern Iceland during the winter of 1948-1949. The names Akureyri disease and Icelandic disease were even known as early names for ME. At the conference we will hear from a virologist who studied this outbreak.
Our aim with the conference is to bring attention to new knowledge and studies, not least for the health sector in Iceland but also patients and others. It will hopefully be the first step on the way to improve the service they get within the health system and elsewhere and we hope for different.
Our vision is a cross-diciplinary team in Iceland that will diagnose, care for and help ME patients to better health and function in life.
The Icelandic ME Society offers beverages during the day. At the afternoon break there will also be fruits and gluten free cupcakes for guests.
The lunch break is hour long and guests can buy a meal at the hotel restaurant. Grand hotel has a special offer for the conference guests: Pumpkin- and carrot soup with freshly-baked bread, see here.
SPECIAL NEEDS AND ASSISTANCE
Some of the guests might have limited stamina and therefore we will provide a room where people can retreat and rest for a while. The setup in the conference room will also be as comfortable as possible. The chairs are rather comfortable (as far as those kind of chairs go) and we will try to provide foot stools, pillows, blankets etc.
Should you have requests or special needs, please contact us by e-mail and we will try our utmost to accommodate you.
All suggestions about how to make this day as pleasant and easy as possible are welcome.
The event is held in Gullteigur at Grand Hotel, Reykjavik. The entrance is on the north side of the building, from Sigtun.
At the entrance someone from the Icelandic ME Society will greet the guests. They will be asked to show their ticket and will get a name tag.